Meniere’s Disease Support Groups

Hi everyone!

 

I wanted to check in even though it’s well past my bedtime.  I wanted to give you a slice of life here from GetPharmacyAdvice.com by passing on this great e-mail/question I received from a member of our community. 

 

The following message pertains to Meniere’s Disease, and I wanted to pass it on in hopes that others would find it helpful in some way, shape, or form! 

“CATE, THANK YOU FOR YOUR KIND WORDS. I HAVE HAD THE RADICAL REMOVAL OF THE INNER EAR. AS I AGE AND BECOME MORE WOBBLY THE LESS I FEEL LIKE GOING OUT ALONE.
MY EAR STILL RINGS AND ROARS AND AT TIMES MY EAR HAS SO MUCH PRESSURE I FIND IT HARD TO THINK CORRECTLY. IT HAS BEEN OVER FIVE YEARS AND I STILL EXPERIENCE THIS. WILL THIS EVER GET ANY BETTER?
I DO NOT KNOW OF ANYONE THAT HAS THIS DISEASE AND NEVER HEARD OF IT PRIOR TO BEING DIAGNOSED WITH IT.
I WOULD BE INTERESTED IN A ATTENDING A MEETING WITH OTHERS WHO HAVE THIS DISEASE AND HAVE HAD THE RADICAL SURGERY”.

My response:

I wrote the Meniere’s article with folks like you in mind.  I can’t begin to tell you how many times I’ve had patients call me at the pharmacy because they were scared, confused, and frustrated.  Unfortunately, as you probably know, there is no cure for Meniere’s and the cause of the condition is unknown.  

 

Will you get better?  That’s tough to say and maybe something your physician would be better able to answer, but I do know that patients do experience temporary spontaneous remissions that last for varying amounts of time.  If you click on this link,  http://www.menieres-disease.ca/index.htm, it should bring you to a very helpful resource full of information on Meniere’s.  The site was started by individuals suffering from Meniere’s Disease, and it has a ton of information including success stories, chat rooms, and a free newsletter. 

 

I am not aware of a site that announces onsite meetings for specific locations around the country, but I think the chat rooms on the site I mentioned above will be very helpful to you – people involved in the chat room may be able to lead you in the right direction!  Also, the founders of the site appear to be very available for those in need – not only do they provide you with their e-mail address, but they allow you to call them as well! 

 

I hope I was at least a little helpful here.  Let me know if there’s more I can do for you and keep me informed of what additional information you may come upon (support groups, group meetings, alternative treatments, etc.) so I can pass the info on to the rest of the GetPharmacyAdvice.com community.

If any of you have comments to add with any info that may be helpful in further addressing this reader’s concerns, please feel free to send it our way.  We’re part of a lovely community here and we hope that everyone can come together to create a supportive atmosphere. 

Before I close this article out, I wanted to let you know that you can click on the following link in order to read my previous article on Meniere’s Disease: http://www.getpharmacyadvice.com/menieres-and-the-ears/.  Once again, I encourage you to voice your opinions and thoughts!

Oh yes, and don’t forget to grab our free video course about money saving ideas relating to your prescription meds by visiting http://www.getpharmacyadvice.com/freegift.html.  You get instant access to the course so check it out ASAP! 

 

Catch y’all later!

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